Multiple
sclerosis is a chronic disease of the central nervous system that
afflicts about 400,000 Americans – mostly women.
Usually
appearing in adults between the ages of 20 and 50, it causes scarring
(or sclerosis) in the fatty tissue, called the myelin, that surrounds
the nerve fibers. Sometimes the fibers themselves are broken or
damaged.
This
scarring can interfere with the impulses between the brain and the
body's muscles, causing a loss of muscular coordination, difficulty
walking, fatigue, dizziness, vision problems and emotional problems,
according to the National Multiple Sclerosis Society.
MS
is not contagious and not considered fatal, the society says in
its literature, and most people who have it do not become severely
disabled. But there is not cure yet, although drugs can help slow
its course and ease its symptoms.
Exercise
is also important to slowing the progress of MS and among the health
programs like tai chi and aquatics, sponsored by the MS society
is one in yoga, the ancient Indian practice of stretch/relaxation
positions combined with meditation.
When
Chaya-Sharon Heller, a Great Barrington-based yoga therapist and
teacher, whose own mother has MS, heard last year that the society
wanted to sponsor an MS/yoga class in the Berkshires, she saw herself
as the ideal candidate to lead it.
"Because
my Mom has MS," Heller said, "as I studied [yoga], I would
think of how things could be adapted to suit her specific needs
and how she could benefit."
She
contacted Kara Macaluso, the program manager at the society's Central
and Western Massachusetts Chapter headquarters in Worcester, and
before long, with the help of referrals from Dr. Laurie Knepper
of Lenox, who has a number of patients with MS, was heading the
MS Society-sponsored class for seven women at the Lenox Community
Center.
The
spring and fall classes ran for six weeks each, but when her students
lobbied her to continue through the winter, Heller agreed to set
up her own class to fill the gap.
"What
yoga does," Heller explained, "is help the student focus
mentally on specific body motions and positions so that the neural
connections between the brain and the muscles are strengthened."
She likened it to "reprogramming" the brain.
While
some exercise positions help increase muscle tone and range of motion
and others aid in relaxation, practiced breathing is also seen as
a benefit.
In
its own booklet, "Exercise as Part of Everyday Life,"
the MS Society said: "The rythmic, abdominal breathing done
in yoga is also important for people with MS who may not be able
to achieve deep breathing through vigorous exercise. Deep breathing
aids circulation and helps maintain respiratory health, diminishing
the possibility of lung infections such as pneumonia."
Heller
said she's seen a difference in those she has worked with over the
past year in terms of flexibility and reduced pain. "There
was a lot of resistance at first," she said, "but they've
just blossomed."
"We
started in chairs, then worked against a wall and now we're down
on mats on the floor," she explained.
There
are many kinds of yoga, she went on, and as a teacher she adapts
the exercises to specifically benefit those with MS. She also gives
"a lot of permission," she said. No one is pushed to do
what may be beyond their capabilities and she is "always checking
in" to guard her charges against fatigue.
By
helping them unite their physical, mental and spiritual selves,
Heller said, she wants her students to see themselves apart from
their disease – which can be difficult for some.
"They
are themselves," she said, "They are not MS."
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